In the United States, health care costs are so out of control that medical crowdfunding has become commonplace. The idea is simple: turn your social network into a financial safety net to cover the cost of expensive treatments or long illnesses. Millions of Americans have started crowdfunding campaigns for medical bills, and tens of millions have donated to them, mostly through the undisputed sector leader, GoFundMe.
Nora Kenworthy, a nursing and health studies professor at the University of Washington, Bothell, has spent years studying the world of crowdfunding for health care — along with the way it ends up amplifying the inequities that already dictate who goes into medical debt.
In her new book, “Crowded Out: The True Costs of Crowdfunding Healthcare,” which will be released on Tuesday, she looks at what she calls the “toxicities” that drive medical crowdfunding campaigns. STAT spoke with Kenworthy about those issues, as well as the difficult moral decisions potential donors face when deciding whether to contribute. The following interview is condensed and edited for clarity.
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